When it comes to having a child with Down syndrome, a lot of people are concerned about the time it will take to look after them, and they worry that they’re other children will miss out. I have times I have felt like that too, but let’s look at what it really looks like.
Hope was quiet in the backseat, and for a few moments as I drove, I forgot she was there. It was only a few moments, but it was a moment of realisation about how easy it is for us get lost in our thoughts, or in what’s coming ahead.
When you have a child with Down syndrome, you quickly realise just how important a strong support system is. Whether it’s family, friends, or even strangers who step up in unexpected ways, these people become your lifeline. From celebrating milestones to helping during tough times, their support makes all the difference.
Hearing The Rose Song in the car with Hope, I suddenly felt the fight in the lyrics—the same fight I hope she carries as she grows. People often place expectations on those with Down syndrome, but Hope is more than a diagnosis. She is a person first, with her own strengths, dreams, and beauty beyond what the world may see. Our hope is that one day, she won’t have to fight to be understood—because people will already see her for who she truly is.
Bedtime has become a never-ending challenge with Hope—tuck her in, say goodnight, and two minutes later, she’s back with a big smile. It’s frustrating, exhausting, and somehow still a little joyful.
Life has been busy, and it’s been a while since I’ve written. Between family, work, and everything in between, finding the time hasn’t been easy. But here we are—back to sharing the ups, downs, and little moments that make life what it is. Hope continues to grow and surprise us every day, and while things have been chaotic, there’s always joy in the journey.
Parenting is full of proud moments, big and small. For us, watching Hope accomplish things in her own time makes those moments even sweeter. From new words to newfound independence, every little milestone is a reminder of her strength and determination. It’s not about comparing timelines—it’s about celebrating progress, no matter how long it takes.
Hope looks up to her brothers in every way—watching, learning, and trying to do everything they do. Whether it’s playing, colouring, or telling stories, she’s determined to keep up. This poem is a reflection of that determination, a reminder that no matter the challenges, she’s growing, learning, and proving that she can be just like them in her own time.
Many people have questions about Down syndrome—what it is, how it happens, and what it means for those who have it. In this blog, we’re breaking it all down in a way that’s easy to understand, answering the most common questions and clearing up some of the myths along the way.
“So, you’re raising awareness?” It’s a question we hear often. While awareness is a great start, our real goal is acceptance. Awareness means knowing something exists, but acceptance requires action. It means seeing past differences, embracing inclusion, and making a conscious effort to create a world where everyone belongs. Read on as we share why acceptance is the next step beyond awareness and how we can all work towards a more inclusive future.