Grommets
16 hours… that felt like much longer. What goes on the night before and the day of getting grommets placed.
Questions Answered By Jonas Sippel
I found an article recently where a person with Down syndrome answered some questions about how he felt about having Down syndrome and about his life. He is name is Jonas Sippel and he is an actor from Berlin. His…
It’ll Be Too Hard On My Other Kids
When it comes to having a child with Down syndrome, a lot of people are concerned about the time it will take to look after them, and they worry that they’re other children will miss out. I have times I have felt like that too, but let’s look at what it really looks like.
Children Left In Cars… How Does This Happen?
Hope was quiet in the backseat, and for a few moments as I drove, I forgot she was there. It was only a few moments, but it was a moment of realisation about how easy it is for us get lost in our thoughts, or in what’s coming ahead.
A Strong Support System
When you have a child with Down syndrome, you quickly realise just how important a strong support system is. Whether it’s family, friends, or even strangers who step up in unexpected ways, these people become your lifeline. From celebrating milestones to helping during tough times, their support makes all the difference.
The Rose Song
Hearing The Rose Song in the car with Hope, I suddenly felt the fight in the lyrics—the same fight I hope she carries as she grows. People often place expectations on those with Down syndrome, but Hope is more than a diagnosis. She is a person first, with her own strengths, dreams, and beauty beyond what the world may see. Our hope is that one day, she won’t have to fight to be understood—because people will already see her for who she truly is.
A Challenge I’m Happy To Have
Bedtime has become a never-ending challenge with Hope—tuck her in, say goodnight, and two minutes later, she’s back with a big smile. It’s frustrating, exhausting, and somehow still a little joyful.
It’s Been A While…
Life has been busy, and it’s been a while since I’ve written. Between family, work, and everything in between, finding the time hasn’t been easy. But here we are—back to sharing the ups, downs, and little moments that make life what it is. Hope continues to grow and surprise us every day, and while things have been chaotic, there’s always joy in the journey.
Proud Moments
Parenting is full of proud moments, big and small. For us, watching Hope accomplish things in her own time makes those moments even sweeter. From new words to newfound independence, every little milestone is a reminder of her strength and determination. It’s not about comparing timelines—it’s about celebrating progress, no matter how long it takes.
Just Like Them
Hope looks up to her brothers in every way—watching, learning, and trying to do everything they do. Whether it’s playing, colouring, or telling stories, she’s determined to keep up. This poem is a reflection of that determination, a reminder that no matter the challenges, she’s growing, learning, and proving that she can be just like them in her own time.