Just recently, it has felt like Hope has just started “getting” things and one of those things, is understanding her name. Hope not only knows what her name is, but she can spell it, sign it, and even write it and while it’s something that she’s been working on for some time, it felt sudden and unexpected when I realised that she could actually do it all.
Hope had her first orientation visit into big school this week. I could probably share a post on all the feelings that go with that, but I’ll save that for another day. Instead, I want to share another little poem…
When we are walking to the car, she will generally go straight to the car ready to climb in. However, there are some mornings that she looks up with her cheeky grin and keeps walking down the driveway. Following directions… it’s not always an easy thing to teach. Here’s a few thoughts.
I wanted to write about something I had recently experienced at a park with Hope. You’ve heard the stories about people taking their kids away and not showing understanding, but the other day we had a completely different experience, which made my day.
Often when we think about security blankets, we think about our kids and their blankets or toys but today I want to talk about my own security blanket. It’s not in the usual form but in the form of a ‘pram’.
When your child is sick, every sign of discomfort adds to your worry as you try to comfort them. With a child who has Down syndrome, these fears are heightened, as the risks can escalate quickly.
Explore the heartfelt poem “Please Don’t Call Me Different,” which captures a child’s plea for acceptance and understanding. This verse celebrates the joy of being oneself and the simple desire to be seen and treated like any other child, highlighting the importance of empathy and inclusion.
Wondering what to say when you hear a child has Down syndrome? Our latest blog post helps you decide between “I’m sorry” and “Congratulations.” Here’s some friendly advice, a helpful video, and explains why “congratulations” is a much more friendly response.
Exciting news! Hope will be starting kindy next year. In this blog post, we share our journey of enrolling her, deciding on the right school, and preparing for this big step. Follow along as we navigate the extra steps needed for a child with Down syndrome.
Here I share the lessons learned while staying in hospital with Hope. From sleepless nights to appreciating the hard work of nurses, understanding emergency buttons, and finding joy in simple games, this blog post shares valuable insights for any parent in a similar situation.