My little shadow, that’s what I have been calling Hope lately. I started writing down what I thought might be going through her head… What I didn’t realise was that writing this would make me rethink how I react to her at times when she is simply trying to help. Here is… “Maybe One Day”…
After a conversation with a parent navigating the challenging and costly process of obtaining an autism diagnosis for their child, I reflected on the struggles many families face in getting the support they need.
After a busy day, I noticed something unexpected that made me smile. It was a small moment, but it showed me just how much Hope is growing and understanding her world.
“There is a high risk of Down syndrome in one or both of your babies.” It was just over 4 years ago that we first heard these words said to us after about 4 weeks of uncertainty. It’s 4 weeks that we will never forget.
These days you hear a lot of talk about inclusion. It’s something we all fight for. We often hear about how it’s what’s fair and right for the kids but we often don’t talk about the whole picture, so I thought I’d share an experience I recently had.
It’s common for people to think that raising a child with Down syndrome is difficult. But is it? Here are just a few thoughts I had on parenting the twins.
16 hours… that felt like much longer. What goes on the night before and the day of getting grommets placed.
I found an article recently where a person with Down syndrome answered some questions about how he felt about having Down syndrome and about his life. He is name is Jonas Sippel and he is an actor from Berlin. His…
When it comes to having a child with Down syndrome, a lot of people are concerned about the time it will take to look after them, and they worry that they’re other children will miss out. I have times I have felt like that too, but let’s look at what it really looks like.
When you have a child with Down syndrome, you quickly realise just how important a strong support system is. Whether it’s family, friends, or even strangers who step up in unexpected ways, these people become your lifeline. From celebrating milestones to helping during tough times, their support makes all the difference.