Hearing The Rose Song in the car with Hope, I suddenly felt the fight in the lyrics—the same fight I hope she carries as she grows. People often place expectations on those with Down syndrome, but Hope is more than a diagnosis. She is a person first, with her own strengths, dreams, and beauty beyond what the world may see. Our hope is that one day, she won’t have to fight to be understood—because people will already see her for who she truly is.
Bedtime has become a never-ending challenge with Hope—tuck her in, say goodnight, and two minutes later, she’s back with a big smile. It’s frustrating, exhausting, and somehow still a little joyful.
Life has been busy, and it’s been a while since I’ve written. Between family, work, and everything in between, finding the time hasn’t been easy. But here we are—back to sharing the ups, downs, and little moments that make life what it is. Hope continues to grow and surprise us every day, and while things have been chaotic, there’s always joy in the journey.
Parenting is full of proud moments, big and small. For us, watching Hope accomplish things in her own time makes those moments even sweeter. From new words to newfound independence, every little milestone is a reminder of her strength and determination. It’s not about comparing timelines—it’s about celebrating progress, no matter how long it takes.
Hope looks up to her brothers in every way—watching, learning, and trying to do everything they do. Whether it’s playing, colouring, or telling stories, she’s determined to keep up. This poem is a reflection of that determination, a reminder that no matter the challenges, she’s growing, learning, and proving that she can be just like them in her own time.
Many people have questions about Down syndrome—what it is, how it happens, and what it means for those who have it. In this blog, we’re breaking it all down in a way that’s easy to understand, answering the most common questions and clearing up some of the myths along the way.
“So, you’re raising awareness?” It’s a question we hear often. While awareness is a great start, our real goal is acceptance. Awareness means knowing something exists, but acceptance requires action. It means seeing past differences, embracing inclusion, and making a conscious effort to create a world where everyone belongs. Read on as we share why acceptance is the next step beyond awareness and how we can all work towards a more inclusive future.
Kids have a way of seeing the world so simply, and our boys are no exception. We sat down with Lincoln and Alexander to ask them a few questions about their sister Hope—what they love about her, what they think about Down syndrome, and whether they believe she’s different. Their responses? Honest, sweet, and full of love. Teaching acceptance starts young, and it’s clear these two already know what truly matters.
What does it take? It’s a question I’ve been asking myself a lot. What kind of person do I need to be for Hope? How do I make sure she thrives? In all my pondering, I realised one thing makes all the difference—belief. Not just in Hope, but in myself. Without self-belief, I wouldn’t have the confidence to push forward, to fight for her, and to take action. It hasn’t always been easy, but I’ve learned to accept where I am, trust myself, and push past fear. Because believing in myself allows me to believe in Hope—and that belief will help her succeed.
Being a parent teaches us so much—about life, about resilience, and about love. But being a parent to a child with Down syndrome has taught me even more. I’ve learned that Down syndrome isn’t what makes life hard; life is just hard sometimes. I’ve seen that love doesn’t always need words to be felt. I’ve learned to celebrate every small victory, to embrace the support around us, and to find my voice in ways I never imagined. Parenting Hope has been life-changing—in the best way possible.