T21 / Down Syndrome Archives - Page 6 of 8

Pregnancy For The Fathers

There’s still a stigma that says men shouldn’t cry, shouldn’t stress and should just “be strong.” But dads feel everything too. In this deeply personal post, Ben shares the fear and heartbreak he experienced during pregnancy complications, the night he broke down begging for his child’s life, and the reminder that fathers aren’t superheroes—they’re human. If you’re walking through pregnancy uncertainty, this is your reminder to check in and ask each other, honestly, “Are you ok?”

Heidi

May 20, 2022

She Has Friends

As parents, we all worry about whether our kids will fit in—but when your child has Down syndrome, that worry can feel heavier. Will she have friends? Will she be included? In this post, I share our fears about Hope starting to form friendships, and the beautiful daycare moment that reassured us she is seen, included and valued. Sometimes, the smallest stories bring the biggest relief.

Heidi

May 13, 2022

Playtime Growth

Life has been busy, noisy and a little chaotic lately—but in the middle of it all, I’ve been reminded just how far our kids have come. Watching Lincoln step into his role as big brother has been one of the greatest joys. From crawling beside Hope so she can “race,” to helping her practise walking and singing songs she loves, his patience and love are simply beautiful. The bond between siblings may look different at times, but it is powerful, natural and full of heart.

Heidi

April 29, 2022

Finding The Joy

Some days as parents are heavy. The kind that leave you exhausted, touched out, and wondering how you’ll do it all again tomorrow. When another mum shared her honest “one of those days” story, followed by a beautiful Patty-Cake breakthrough, it was a reminder we all need: even on the hardest days, there is still joy to be found. Sometimes we just have to stop and look for it.

Heidi

April 15, 2022

Misinformation

Did you know 36% of children with Down syndrome have some hearing loss? Hope’s hearing journey involved confusing test results, missed details, and ultimately grommets — but it also showed us the importance of speech therapists who fight for our children. Their care and advocacy made all the difference in helping Hope hear clearly and continue her speech development.

Heidi

November 12, 2021

It’s Time To Move

When Hope started physiotherapy as a baby, I didn’t fully understand why it needed to begin so early. I was focused on the “right now,” not the bigger picture. This is our journey through muscle tone, milestone charts, tough assessment results, and learning that steady progress — even when it feels slow — is still something worth celebrating.

Heidi

October 29, 2021

Dear Ben

On the day I was told my daughter had Down syndrome, I didn’t know what to feel — fear, heartbreak, anger, love… it all collided at once. This is a letter to the version of me standing in that moment, reminding him that she will be okay, that I will grow stronger, and that while I can’t change her diagnosis, I can help change the world she’s born into.

Ben Jones

October 22, 2021

Dear Heidi

On the day we were told our baby had a 99% chance of Down syndrome, fear took over. I didn’t know what our future would look like, or whether I would be enough. This is a letter to that version of me — the scared mum sitting with unanswered questions — sharing what I now know: the challenges are real, but so is the joy, the growth, and the strength you didn’t know you had.

Heidi

October 22, 2021

One Of Our Greatest Fears

When Hope’s features were mirrored in a doll, a group of teens called it “weird.” It was a small moment, but it highlighted a bigger issue: the world’s perception of difference. Growing up, I know what it feels like not to fit in, and I don’t want Hope to feel that way. Children with Down syndrome are strong, resilient, and deserve acceptance—not just awareness. This blog is about persistence, love, and helping the world see that difference is normal.

Heidi

October 15, 2021

Heartbreaking But True

Many families face pressure and negativity when learning their child has Down syndrome, often from healthcare professionals. But these children are not broken—they bring love, joy, and lessons the world can’t teach elsewhere. From daily moments to inspiring success stories, children with Down syndrome show us strength, resilience, and the power of unconditional love. Understanding and support can make all the difference.

Heidi

October 8, 2021