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boundaries

Setting Boundaries

While Hope loves giving hugs, it’s important for her to learn who she can and can’t hug for her safety and the comfort of others. In this post, I share our ongoing journey of teaching her about personal space, consent, and finding the balance between allowing her to express love while keeping her safe.

hope alexander long

Opportunities To Learn: The Power of Pausing

When we are walking to the car, she will generally go straight to the car ready to climb in. However, there are some mornings that she looks up with her cheeky grin and keeps walking down the driveway. Following directions… it’s not always an easy thing to teach. Here’s a few thoughts.

hope on swing

Thank You – Small Gestures That Go A Long Way

I wanted to write about something I had recently experienced at a park with Hope. You’ve heard the stories about people taking their kids away and not showing understanding, but the other day we had a completely different experience, which made my day.

hope at zoo

Letting Go Of My Security Blanket

Often when we think about security blankets, we think about our kids and their blankets or toys but today I want to talk about my own security blanket. It’s not in the usual form but in the form of a ‘pram’.

when the boogers don't run clear

When The Boogers Don’t Run Clear….

When your child is sick, every sign of discomfort adds to your worry as you try to comfort them. With a child who has Down syndrome, these fears are heightened, as the risks can escalate quickly.

please don't call me different

Please Don’t Call Me Different

Explore the heartfelt poem “Please Don’t Call Me Different,” which captures a child’s plea for acceptance and understanding. This verse celebrates the joy of being oneself and the simple desire to be seen and treated like any other child, highlighting the importance of empathy and inclusion.

I’m Sorry or Congratulations

I’m Sorry or Congratulations

Wondering what to say when you hear a child has Down syndrome? Our latest blog post helps you decide between “I’m sorry” and “Congratulations.” Here’s some friendly advice, a helpful video, and explains why “congratulations” is a much more friendly response.

school enrolment time

School Enrolment Time

Exciting news! Hope will be starting kindy next year. In this blog post, we share our journey of enrolling her, deciding on the right school, and preparing for this big step. Follow along as we navigate the extra steps needed for a child with Down syndrome.

lessons from hospital

Lessons From Hospital

Here I share the lessons learned while staying in hospital with Hope. From sleepless nights to appreciating the hard work of nurses, understanding emergency buttons, and finding joy in simple games, this blog post shares valuable insights for any parent in a similar situation.

mum

One Word… Mum

“Mum” is a word that echoes through our homes daily, often to the point where we can almost tire of hearing it. But for some, like me, it’s a word we longed to hear for years. And now… I’m hearing it.

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